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XerodermaPigmentosum news

Health secretary under fire for refusing to meet north-east campaigners

Press and Journal - Oct 1, 2018
“We expect that those with rare diseases, such as xeroderma pigmentosum (XP), receive the specialist care they require, which can include treatment elsewhere in the UK. “Only drugs and devices included on the Scottish Drug Tariff can be prescribed and ...

This cafés incredible gesture is helping to save a Hull man's life

Hull Daily Mail - Sep 20, 2018
Josh, of Victoria Dock, was born with Xeroderma Pigmentosum, a genetic disorder which means his skin has a reduced ability to repair itself, specifically damaged caused by sunlight. He has always tried to avoid UV light, covering up during daylight ...

What is xeroderma pigmentosum?

Health.com - Mar 6, 2018
XP is a genetic condition that makes people extremely sensitive to sunlight. It's also extremely rare: Just 1 in 1 million people in the U.S. suffers from the disorder, according to the U.S. National Library of Medicine's Genetics Home Reference (GHR).

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Xeroderma Pigmentosum

Autosomal recessive disease.

Allergic to the Sun (Xeroderma Pigmentosum)

Fatima Perez is allergic to the sun and supposed to remain inside at all times. She is diagnosed with Xeroderma Pigmentosum, a rare disorder resulting in the ...

What is XP? AnnaLiberty.com - xeroderma pigmentosum

Learn about Anna Liberty's rare disease in this short, interesting video. Her website is http://www.AnnaLiberty.com Anna Liberty is an adorable little girl who ...

Rare disease 'xeroderma pigmentosum'...

Youngsters in France known as 'Children of the Moon' are struck with the genetic disorder 'xeroderma pigmentosum', which makes exposure to sunlight ...

Xeroderma Pigmentosum MCB164

MCB164 HW2 (5/23/2014) Xeroderma Pigmentosum Project.